Ep48 Pulse 126: Conference Wrap Up, PWS Comic Book, Interactive Map, Law Enforcement Letter

The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 

24 Hour Crisis Line: 941-312-0400

United in Hope Conference

United in Hope—and Action: Reflections from the International Prader-Willi Syndrome Conference

2025 United in Hope International PWS Conference - YouTube

PWSA | USA 50th Birthday Party Drone Show

Submit conference testimonials to africke@pwsausa.org or communications@pwsausa.org

50^th Anniversary

PWSA Memory: 1975-_-Vol-I-N1-July-1975.pdf

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Events

PWSAUSA 50th Anniversary: Journey of Hope Celebration - Campaign

Fundraisers

Hunter Lens Golf Tournament - Campaign

PWSA Fundraising Pages - Campaign

Spotlight on Hope

Share Your Story - Prader-Willi Syndrome Association | USA

Podcast

Questions for Dr. Pacha

Advocacy

advocacy@pwsausa.org

Family Support

Conference Recap from a Grateful Mom and a Happy Daughter - Prader-Willi Syndrome Association | USA

C15 Foundation – Where Unlimited Potential Can Grow and Thrive

Pacific Northwest Map: PWSA Link: Your Guide for Prader-Willi Syndrome Support

Ask Nurse Lynn: Aging in PWS and Life Spans - Prader-Willi Syndrome Association | USA

Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Research

TEMPO PWS Clinical Study For Prader-Willi Syndrome - Enroll Today

HarmonyPWS@science37.com

Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA

Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA

Request for Prader-Willi Syndrome Research Grant Applications - Prader-Willi Syndrome Association | USA

Announcements/Resource Spotlight

To-Law-Enforcement-Personnel-Regarding-Adults-with-PWS.pdf

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