Tuesday May 20, 2025
Ep42 Pulse 123: Awareness Ideas, Prader Silly, Adults with PWS Spotlights, In Memory of Jim Gardner
The latest in PWSA | USA events and PWS news in research, family support, and advocacy.
24 Hour Crisis Line: 941-312-0400
PWS Awareness Month - Prader-Willi Syndrome Association | USA
United in Hope Conference
Home - 2025 United in Hope PWS Conference
High-Level 2025 Conference Schedule Family Conference
Clinical and Scientific Program
High-Level 2025 Conference Schedule Professional Providers
50th Anniversary
PWSA Memory: 1995_Vol-XX-N1-Feb-1995.pdf
Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA
Events
Prader Silly: A Night of Rare Laughs - Campaign
Fundraisers
Lyra Mills's fundraising page for Prader-Willi Syndrome Association
Filling Cups with PWS Awareness - Prader-Willi Syndrome Association | USA
PWSA Fundraising Pages - Campaign
Spotlight on Hope
Spotlight on Hope: Lydia and Dalyas Dreamers - Prader-Willi Syndrome Association | USA
Share Your Story - Prader-Willi Syndrome Association | USA
Advocacy
PWSA Advocates Represent Disability Needs and Rights in DC - Prader-Willi Syndrome Association | USA
PWS Awareness Month Proclamation Toolkit
Family Support
Adults with PWS Advisory Board Spotlight: Conor Heybach - Prader-Willi Syndrome Association | USA
PWSA | USA Family Support Webinar: Creating Financial Security for a Loved One with PWS
Family Resource Program - Parents/Caregiver Focus Groups
Family Resource Program - Sibling Focus Groups
Ask Nurse Lynn: Genetics and Weight Gain - Prader-Willi Syndrome Association | USA
Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Research
Aardvark’s HERO Clinical Trial Webinar: Webinar Registration - Zoom
Dr. Pacha’s Educational Trends Survey: Caregiver Screener | QuestionPro Survey
Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA
Announcements/Resource Spotlight
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