Ep36 Pulse 120: Annual Report, VYKAT XR Webinar, Awareness Proclamation Toolkit, Sibling Guide

The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 

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PWSA | USA’s Annual Report:   Online Flipbook

United in Hope Conference

Home - 2025 United in Hope PWS Conference

Mural: 2025 PWS Conference Mural Photo Submission - Prader-Willi Syndrome Association | USA

For info on sponsorship opportunities: development@pwsausa.org

50^th Anniversary

PWSA Memory: Pioneering geneticist Merlin G. Butler, M.D., Ph.D., keeps pushing the boundaries of science

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Events

VYKAT XR (formerly DCCR) informational webinar

Home | VYKAT XR (diazoxide choline) extended-release tablets

Prader-Willi Alliance of New York Inc. - Events

Fundraisers

United We Brunch - Campaign

PWSA Fundraising Pages - Campaign

Spotlight on Hope

Spotlight on Hope Library

Share Your Story - Prader-Willi Syndrome Association | USA

Advocacy

PWS Awareness Month Proclamation Toolkit

advocacy@pwsausa.org

etowle@pwsausa.org

Family Support

Sibling Support Guide

What It's Like to Have a Sibling with PWS - Prader-Willi Syndrome Association | USA

Send your sibling blog to africke@pwsausa.org

A Loving School is Vital - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn: Food-Seeking Behaviors - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Research

Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA

Request for Prader-Willi Syndrome Research Grant Applications - Prader-Willi Syndrome Association | USA

Announcements/Resource Spotlight

Q-and-A_Blue.pdf

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