Tuesday Feb 25, 2025
Ep30 Pulse 117: Commitment to Advocacy, Rare Disease Week, 50th Gala Tickets, Calls to Action
The latest in PWSA | USA events and PWS news in research, family support, and advocacy.
Events
Rare Disease Day
Rare Disease Day Hub: PWS - Rare Disease Day - Prader-Willi Syndrome Association | USA
Rare Disease Week - EveryLife Foundation for Rare Diseases
Live Stream: Rare Disease Week - Attendee Corner Virtual Rare Disease Week - EveryLife Foundation for Rare Diseases
Rare Disease Day 2025 – Join Us!
Rare Disease Week Advocacy Calls to Action: Join Rare Disease Week Advocacy from Home - Prader-Willi Syndrome Association | USA
United in Hope Conference
Home - 2025 United in Hope PWS Conference
Mural: 2025 PWS Conference Mural Photo Submission - Prader-Willi Syndrome Association | USA
For info on sponsorship opportunities: development@pwsausa.org
50th Anniversary
Journey of Hope Gala: Donate to Diamonds & Denim 2025
Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA
BIPOC Listening Sessions: Listening Session: Prader-Willi Syndrome
Fundraisers
Prader-Willi Hot Stove | Powered By GiveSmart
PWSA Fundraising Pages - Campaign
Spotlight on Hope
New Mexico teen receives national acclaim for Girl Scout Gold Award project - KOB.com
Share Your Story - Prader-Willi Syndrome Association | USA
Call to Action!
Call to Action: Save Our Clinical Trials - Prader-Willi Syndrome Association | USA
Advocacy
Aardvark Therapeutics Rings the Closing Bell | Nasdaq
Family Support
Celebrating National Caregivers Day 2025 - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn: Memory, Confabulation, and Aging in PWS - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Share Your "PWS in Adulthood" Story - Prader-Willi Syndrome Association | USA
Research
Twins & Prader-Willi Syndrome Survey
Announcements/Resource Spotlight
Call for Nominations or Board of Directors
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