Tuesday Feb 11, 2025
Ep28 Pulse 116: Growth Hormone Pioneer, Advocacy Wins, TREND Report on Behavior, Job Announcement
The latest in PWSA | USA events and PWS news in research, family support, and advocacy.
Events
Hotel Reservations: Arizona Grand Resort & Spa - Reservations - Room Availability Search
Home - 2025 United in Hope PWS Conference
For info on sponsorship opportunities: development@pwsausa.org
Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA
Prader-Willi Hot Stove | Powered By GiveSmart
Donate to Diamonds & Denim 2025
PWSA Fundraising Pages - Campaign
Rare Disease Day 2025 – Join Us!
Spotlight on Hope
Spotlight on Hope: Cam, PWS Warrior - Prader-Willi Syndrome Association | USA
Share Your Story - Prader-Willi Syndrome Association | USA
PWS United
Advocacy
Victory for the PWS Community in Illinois - Prader-Willi Syndrome Association | USA
Illinois General Assembly - Bill Status for SB1651
Illinois General Assembly - Bill Status for HB2541
Find your State Legislator: p2a.co/O6Zyn8Q
Family Support
Steps Toward More Independent Living - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Share Your "PWS in Adulthood" Story - Prader-Willi Syndrome Association | USA
Research
TREND Report on PWS and Emotional and Behavioral Patterns: 2025_1_31_FINAL_PWS_Report_3.pdf
Harmony Biosciences Initiates TEMPO PWS Study - Prader-Willi Syndrome Association | USA
Announcements/Resource Spotlight
PWSA | USA Employment - Prader-Willi Syndrome Association | USA
Stacy Ward email for resume: sward@pwsausa.org
Resources A-Z: Behavior - Prader-Willi Syndrome Association | USA
Comments (0)
To leave or reply to comments, please download free Podbean or
No Comments
To leave or reply to comments,
please download free Podbean App.