Tuesday Dec 24, 2024

Ep22 Pulse 113: Marathon Runner, Inclusive Advocacy, Art Share Extension, PWS in Adulthood, The Holidays

In this Pulse episode, Carrie and Anne discuss the holidays, the upcoming close of Angel Drive, Stacy's message of gratitude and progress, a young marathon runner with PWS, Rare Aware Art deadline, 2025 International conference, Hot Stove save the date, Inclusive Advocacy in Action, James and Elaine Towle's "Our Stories" video, year-end highlights for advocacy, the latest PWS in Adulthood blog, an Ask Nurse Lynn question about Lorazepam, international book award for Destiny Pacha, call for abstracts for Clinical and Scientific program, ECHO webinar library, our blog on traveling with medication, and an expression of our gratitude for the PWS community and those who have listened, reviewed, and supported the PWS United podcast as we continue this initiative. Happy Holidays to all the PWS families and beyond!

Emails:

Join BIPOC Affinity Group: BIPOCPWS@gmail.com

Share PWS in Adulthood Blogs: africke@pwsausa.org

LINKS

Angel Drive 2024 - Prader-Willi Syndrome Association | USA

Hope in Action: A Message of Gratitude and Progress from PWSA | USA

PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA

Home - 2025 United in Hope PWS Conference

Spotlight on Hope

Klara on the Run - Prader-Willi Syndrome Association | USA

Advocacy

Empowering Change: Inclusive Advocacy in Action - Prader-Willi Syndrome Association | USA