Thursday Nov 07, 2024
Ep15 Pulse 110: Angel Drive Kick-Off, NORD Summit, Family Caregiver Month, Clinical Trial Journey
The latest in PWSA events and PWS news in research, family support, and advocacy with PWSA | USA's Director of Development, Melanie McDonald, filling in for Carrie. Hear about the launch of our Angel Drive campaign and how you can donate, the latest happenings on Capitol Hill, support for PWS families affected by the recent hurricanes, PWS in adulthood blog series, upcoming family support webinars, workshops, and offerings and Family Caregiver Month, an update on one family's clinical trial journey, the newest TEMPO clinical trial site, ECHO webinar series, and Melanie's mission moment.
LINKS
https://www.pwsausa.org/angel-drive-2024/
About PWSA | USA's Hope in Action Series
https://www.pwsausa.org/get-involved/share-your-story/
Home - 2025 United in Hope PWS Conference
PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA
Hurricane Relief: info@pwsausa.org, or call us directly at 941-312-0400
Events from November 1 – June 24, 2025 – Prader-Willi Syndrome Association | USA
Workplace Assistance - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn: Emergency Information Folder - Prader-Willi Syndrome Association | USA
Self-Care for Caregivers - Prader-Willi Syndrome Association | USA
Babysitter and Care Provider Training: Webinar Registration - Zoom
Journaling and Story Sharing Workshop: africke@pwsausa.org
Baseline and Video Interview - Prader-Willi Syndrome Association | USA
TEMPO PWS Clinical Study For Prader-Willi Syndrome - Enroll Today
Call for Abstracts: Conference 2025 - IPWSO
Project Echo - Prader-Willi Syndrome Association | USA
Meditation, Mindfulness, and Self-Care - Prader-Willi Syndrome Association | USA
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