Ep13 Pulse109: Physical Therapy Month, Dominique Valenti, FDA Meeting, PWS Book Review

Updates on PWSA events and fundraisers, along with the latest news in advocacy, family support, and research in the PWS community. 

PWSA | USA's hotline is (941) 312-0400

Links:

Therapeutic-interventions-1-1.pdf

Move Play Thrive | Brain and Sensory Foundations Course - Home

Share Your Story - Prader-Willi Syndrome Association | USA

Home - 2025 United in Hope PWS Conference

PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA

PWS Hope United: Dance Silly for Prader-Willi

The Giving Pump 2024, CPD Energy & Prader-Willi Syndrome Association

Events from October 24 – June 24, 2025 – Prader-Willi Syndrome Association | USA

New England Prader Willi Conference Tickets, Sat, Nov 2, 2024 at 8:30 AM | Eventbrite

Halloween Fun for Everyone - Prader-Willi Syndrome Association | USA

https://support4pws.com/

FDA Priority Review of DCCR for PWS: Latest Update and What It Means - Prader-Willi Syndrome Association | USA

Home | Reagan-Udall Foundation

Success-for-PWS-FDA-Rare-Disease-Innovation-HUB_Oct10_tvs.pdf

Adults with PWS Advisory Board Gathers in Phoenix: Shaping the Future of Support, Advocacy for Individuals Living with PWS - Prader-Willi Syndrome Association | USA

Forces of Nature, A PWS Book Review - Prader-Willi Syndrome Association | USA

Embracing Differences | The Journey Behind "It Starts With Hello: Katie’s Story About Prader-Willi Syndrome" - Prader-Willi Syndrome Association | USA

Spreading Joy: Operation Holiday Cheer Returns to Support PWS Families in 2024 - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn: Aging in PWS - Prader-Willi Syndrome Association | USA

Webinar Registration - Zoom TREND Webinar

Remote Light Therapy Study: psychresearch@maimo.org

Conference 2025 - IPWSO: Abstracts Submissions

Project Echo - Prader-Willi Syndrome Association | USA

ECHO 4 PWS: Cardiac Concerns webinar recording

Hope for the Holidays - Prader-Willi Syndrome Association | USA

A Letter to Friends and Family - Prader-Willi Syndrome Association | USA

 

 

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