Ep 23 Pulse 114: Celebrating 50 Years of Hope, Advocacy Class, PWSA Egypt, Journeys Project on Discord, Community Stories

Listen to the latest in PWSA events and PWS news: how to help us celebrate our 50th Birthday year in 2025 at the Journey of Hope Gala and our 50th birthday party at the International PWS conference in June, a young artist's Spotlight on Hope, call for Rare Aware Art Share submissions, Diamonds and Denim fundraiser, the upcoming PWS Advocacy master class, PWSA Egypt, Nurse Lynn's response for a late diagnosis and newborn screening, the new Journeys project on PWS Connect on Discord, call for abstracts for Clinical and Scientific Program, our Parent/Family Mentor Program, and of course, Carrie and Anne's latest mission moments. 

Emails:

Dorothea Lantz, Community Engagement Director - dlantz@pwsausa.org

Jim Sliney at Patients Rising - jsliney@patient​srising.org

info@pwsausa.org

Events

Celebrating 50 Years of Hope: Ushering in PWSA | USA’s Anniversary Year - Prader-Willi Syndrome Association | USA

PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA

Home - 2025 United in Hope PWS Conference

Diamonds & Denim 2025 - Campaign

PWSA Fundraising Pages - Campaign

Spotlight on Hope

Spotlight on Hope: Lenny's Business Fair Breakthrough - Prader-Willi Syndrome Association | USA

Share Your Story - Prader-Willi Syndrome Association | USA

Advocacy

PWS Advocacy Master Class Sign up | Patient Rising Community

Family Support

A Global Network of Hope: How PWSA Egypt & Middle East is Transforming Lives - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn: Late Diagnosis and Newborn Screening - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Research

Call for Abstracts:

Conference 2025 - IPWSO

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